Ems tells us why she wanted to get involved.....
"I find the process really interesting in itself, and also love the fact that we can use a difficult experience for us as a family to try and help others - that feels like purpose and making a small but lasting positive impact on the world! I love what you and the team are doing, delighted and privileged to help in any way that we can!"
Ems, mum to Nora with JDM
Introducing....
Welcome
to our website to our UK families
We are currently recruiting :
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- Parents of children and young people with rheumatic conditions from the UK to test out our chatbot 'Rheumbot'
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AND
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- Siblings of children and young people with rheumatic conditions to talk to us in an interview about their perspectives
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Thanks so very much to everyone who has spoken to us we have now developed the first ever Chatbot for Paediatric Rheumatology!
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Think ChatGPT, think Gemini, think DeepSeek - and then think more personalised, more informative, more empathetic and safer! Full of content from real expert parents and paediatric rheumatology experts. A full resource available with one click. No more searching for answers in the night, no need to wait until your local healthcare team turn up on Monday morning!​
​So we are now recruiting parents and carers who want to test out our chatbot - ask it questions when you want and let us know what you think!​ Please sign up below if you are interested.
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Siblings are often excluded from research. So we are ALSO recruiting siblings (8 years+) of young people with rheumatological conditions to be involved in the study. We really want to understand their perspectives and views.
If you have a sibling of a child with a paediatric rheumatological condition who would like to take part, or you are one yourself, please do get in touch with us.​
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If so, please sign up in the box below and we will be in contact with you to explain further about the study.​
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Thank you for your interest and support in improving care for all families living with any rheumatic disease of childhood. Please do go and visit some of our other pages on the website and watch some of our videos.
PLEASE CONSIDER BEING PART OF THIS STUDY
If you are interested in any of this work and especially if you would like to take part in a focus group, please contact Dr Polly Livermore by completing this form.