Ems tells us why she wanted to get involved.....
"I find the process really interesting in itself, and also love the fact that we can use a difficult experience for us as a family to try and help others - that feels like purpose and making a small but lasting positive impact on the world! I love what you and the team are doing, delighted and privileged to help in any way that we can!"
Ems, mum to Nora with JDM
Welcome
to our website
to everyone
from Canada!
The UK IMPACT team have been working with the amazing Rheumatology team at SickKids in Canada, especially Dr Knight, Professor Feldman and many others, including Asha and her fab research team.
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Here is Andrea Knight and myself when I visited in October 2024.
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We would now like to offer the opportunity to Canadian families to tell us about their experiences and what they think works well and what doesn't work so well. This will help us understand how to offer better support to families across the world.
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Would you be interested to talk to us in a virtual group (on the computer in a Teams meeting) with other Canadian parents and caregivers, and help us understand what good care looks like? If so, please sign up in the box below and we will be in contact with you to explain further about the study.​
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Thank you for your interest and support in improving care for all families living with any rheumatic disease of childhood.
Here is 2 pages from our information sheet so you can see what will happen.
You will get the whole thing to read if you are interested to take part.
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Once you have signed up, please feel free to visit the other webpages and watch our video of work been done so far.
PLEASE CONSIDER BEING PART OF THIS STUDY
If you are interested in any of this work and especially if you would like to take part in a focus group, please contact Dr Polly Livermore by completing this form.